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Your privacy is important to
us. The National Organization Against Rare Cancers (“NOARC”)
has created this statement to demonstrate our commitment to
privacy and to provide you with our online information
practices, including the choices you can make about the way your
information is collected and used. Please read this statement
in conjunction with our
Terms of Use policy.
About this Privacy
Statement and Using the NOARC Site
This Privacy Statement applies to the NOARC site only. The
NOARC site contains links to other sites. Once you entire
another site, be aware that NOARC is not responsible for the
privacy practices of such other sites. We encourage you to look
for and review the privacy statements of each and every website
that you visit through a link on the NOARC site.
Types of Information We
Collect
You may visit our site without submitting any information
about yourself. If you register or sent us a communication via
our guestbook or discussion forum you will be asked to submit
information about yourself. We will use this information for
replying to your message or forwarding the requested
information. We do not share this information with any other
partners or affiliations.
Please note that NOARC will not respond to any question
concerning a specific medical or health condition. Of course,
we will not intentionally share the contents of any
communication directed solely for NOARC with any third
party. However, due to the nature of the electronic
communications, we cannot and do not provide any assurances that
the contents of your electronic communications will not become
known or accessible to third parties. WE URGE YOU NOT TO
PROVIDE ANY CONFIDENTIAL INFORMATION ABOUT YOU OR YOUR HEALTH TO
USE VIA ELECTRONIC COMMUNICATION. If you do so, it is at
your own risk.
Cookies
Our site does not use any personally identifiable
information through the use of “cookies”, which is a piece of
data stored on the user’s hard drive containing information
about the user. Usage of a cookies in no way linked to any
personally identifiable information while on our site. Once the
user closes their browser, the cookie simply terminates.For
instance, by setting a cookie on our site, the user would not
have to log in a password more than once, thereby saving time
while on our site. If a user rejects the cookie, they still can
productively use our site. The only drawback to this is that
the user will by limited in some areas of our site. Your
browser software can be set to reject or accept all cookies.
Most browsers offer instructions on how to reset the browser to
reject cookies in the “Help” section of the toolbar.
Some of our business partners use cookies on our site (for
example, advertisers). However, we have no access to or control
over these cookies.
“Cookies” are nuggets of information that are placed by a web
site in a storage place on your own computer. The types of
information we collect with cookies include the name of your
Internet service provider, the web site that referred you to use
(if any), the date and time our web site was accessed, the page
or pages visited, and your IP address. Our cookies do not
contain information that is, in itself, personally identifying.
Log Files
Our site may log IP addresses of visitors, but only to
administer the site and diagnose problems with our servers. We
also use cookies to customize content specific to your
interests, to ensure that you don not see the same advertisement
repeatedly and to store your password so you do not have to
re-enter it each time you visit the site.
Web
Beacons
We also may use Web Beacons to collect Non-Personal
Information about your use of our site. The information
collected by Web Beacons (i) allows us to statistically monitor
how many people are using our site and (ii) for what purposes
these actions are being taken. Our Web Beacons are not used to
track your activity outside of our site. We do not link
Non-Personal Information from Web Beacons to Personally
Identifiable Information without your permission and do not use
Web Beacons to collect or store Personal Health Information
about you.
“Web Beacons” (also often referenced as "clear GIFs", "web
bugs", "1-by-1 GIFs", "Single-Pixal GIFs", "1 x 1 Pixals", or
"clear Pixals") are tiny graphic image files, imbedded in a web
page in GIF, jpeg or HTML format, that provide a presence on the
web page and send back to its home server (which can belong to
the host site, a network advertiser or some other third party)
information from the Users' browser, such as the IP address, the
URL of the page on which the beacon is located, the type browser
that is accessing the site and the ID number of any Cookies on
the Users' computer previously placed by that server. Web
Beacons can also be used to place a Cookie on the Users'
browser.
Sharing
We will share aggregated demographic information with our
partners and advertisers. This is not linked to any personal
information that can identify any individual person.
We use an outside credit card
processing company to process tax deductible contributions.
These companies do not retain, share, store or use personally
identifiable information for any secondary purposes.
Hyperlinks or Links
This site contains links to other sites. Please be
aware the NOARC is not responsible for the privacy practices of
such other sites. We encourage our users to be aware when they
leave our site and to read the privacy statements of each and
every site that collects personally identifiable
information. This Privacy Statement applies solely to
information collected by this site.
Please refer to
Terms of Use for additional information regarding
links to other sites.
Security
This web site takes every precaution to protect our
users’ information. When users submit sensitive information via
this site, your information is protected both on-line and
off-line.
Children
We are committed to protecting the privacy of children.
The NOARC site and services are not designed or intended to
attract children under the age of 13. We do not collect
Personally Identifiable Information from any person we actually
know is under the age of 13. A parent or guardian, however, may
use the NOARC site to discuss and communicate Personally
Identifiable Information regarding their child. The parent or
guardian is solely responsible for accuracy and disclosure of
providing such information regarding their child. Furthermore,
the parent or guardian assumes full responsibility for ensuring
that the registration information is kept secure and that the
information submitted is accurate. The parent or guardian also
assumes full responsibility for the interpretation and use of
any information or suggestions provided through NOARC site for
the minor.
Notification
of Changes
We reserve the right, at any time and without notice,
to add to, change, update, or modify this Privacy Statement,
simply by posting such change, update or modification on this
site. Any such change, update or modification will be effective
immediately upon posting on this site.
Contact Information
If you have any questions about this Privacy Statement
or the practices of this site, you can contact us at
info@curerarecancers.org .
Also, please read the
Terms of Use for this site. |
